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Community involvement

One way the Wal-yan Respiratory Research Centre provides the opportunity for consumers and community members to contribute to our research is through participation in one of our eight community reference groups.

The Kids Research Institute Australia is committed to involving consumers and the community in all aspects of our research.

One way the Wal-yan Respiratory Research Centre provides the opportunity for consumers and community members to contribute to our research is through participation in one of our eight community reference groups.

Although each community reference group is unique, they all have a shared purpose to:

  • Support the development of partnerships between researchers, consumers, and research organisations
  • Provide a consumer perspective to the research being conducted, and
  • Enhance the quality and relevance of research activities through consumer participation

Examples of how community reference group members may participate in research development and planning include:

  • Providing guidance on community priorities for research, how to carry out the research and how to communicate the results of the research
  • Providing advice and support on research grant applications and plain language summaries, and
  • Reviewing information sheets and questionnaires used in the process of study recruitment.

If you would like to get involved in our research, please email the relevant community reference group contact listed below, or email engagement@telethonkids.org.au.

Our community reference groups

Anti-microbial Resistance

  • Area of interest: Anti-microbial resistance
  • Purpose: To provide  a community perspective on the research activities into antimicrobial resistance within the Wal-yan Respiratory Research Centre and in association with the Wesfarmers Centre for Vaccines and infectious Disease (WCVID)
  • Contact: Amy Greenly

INSPIRE (INnovative Solutions and Partnerships for Indigenous Respiratory Excellence) Consumer Reference Group of WA

  • Area of interest: This is a group for parents and guardians of Aboriginal children who have, or have had, lung sickness.
  • Purpose: To give a family perspective to both medical and research aspects of lung sickness.
  • Contact: Ms Erica Thompson, Ms Timeah Archer / +61 447 355 349, Ms Mikayla Garstone
  • Click here for more information.

Bronchiectasis Consumer Reference Group of WA

  • Area of interest: Bronchiectasis in children
  • Purpose: To provide a consumer perspective to both clinical and research aspects of bronchiectasis, pertaining to clinical and research priorities, practice, and policies.
  • Contact: Alana Harper

Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA

  • Area of interest: Cystic fibrosis (CF), young children’s CF
  • Purpose: To provide a consumer perspective to both clinical and research aspects of cystic fibrosis, pertaining to clinical and research priorities, practice, and policies.
  • Contact: ARESTCF@thekids.org.au
  • Click here for further information

MAP (Metabolomics to predict asthma in children) Consumer Reference Group

Kids Easy Breathing Study (KEBS) Aboriginal Advisory Committee 

  • Area of interest: Bronchiolitis in Aboriginal and Torres Strait Islander Children
  • Purpose: To provide culturally appropriate guidance to maintain cultural integrity and ensure cultural safety on the research activities within the KEBS Study at The Kids Research Institute Australia.
  • Contact: Caris Jalla 

Neuromuscular Consumer Reference Group

Next Generation CF Youth Consumer Reference Group

  • Area of interest: Cystic fibrosis (CF) in youth / teenagers
  • Purpose: To provide a community perspective on the research activities across The Kids Research Institute Australia and the research project Next Gen CF that is being run out of Perth Children’s Hospital.
  • Contact: Alana Harper or Grace Pettigrew

Preterm Community Reference Group

  • Area of interest: Research that involves preterm kids
  • Purpose: To provide a community perspective on the research activities led from The Kids Research Institute Australia and across affiliated universities, hospitals, research institutes and community groups for ongoing and future research projects into the impact of preterm birth.
  • Contact: Neave Garland

Western Australian Epithelial Research Program (WAERP) Consumer Reference Group

  • Area of interest: Asthma, cystic fibrosis and other respiratory disorders in kids, airway epithelium
  • Purpose: To provide community perspective on asthma and other respiratory research activities within the Airway Epithelial Research Group at The Kids Research Institute Australia.
  • Contact: Amy Greenly
  • Click here for more information.

Future Child Health Aboriginal Advisory Group 

  • Area of interest: Impact of climate change on Aboriginal Child Health
  • Purpose: To provide an Aboriginal community perspective on the research activities of the Future Child Health team, including ideas for future research, the best approaches to informing community about research outcomes, and how the research can be translated into better health outcomes for Aboriginal children through interventions and changes to policy
  • Contact: Melinda Judge
  • Click here for more information.